Hands of a patient with monkeypox in 1997 (Source: straitstimes.com) Hanoi (VNA) – Singaporean Ministry of Health (MOH) announced on May 9 that it has detected the first case of monkeypox, with the patient identified as a 38-year-old Nigerian who arrived in Singapore in late last month. The ministry assumed he might contract the disease by eating bushmeat at a wedding in Nigeria that he attended before his arrival in Singapore. Bushmeat, which can be chimpanzee, gorilla, antelope, birds or rodent, is a staple of some African diets and could be a source of transmission of the virus. The man is in stable condition in an isolation ward at the National Centre for Infectious Diseases, the ministry added. Although the risk of the disease spreading among human is low, the MOH said it is taking precautions by investigating 23 persons identified as being in close contact with the patient while he was in Singapore. Monkeypox is a virus similar to the human smallpox, which was … [Read more...] about Singapore detects first case of rare monkeypox
Pfizer rare disease
Diseases can be rare but love shouldn’t be
Viet Nam News By Hồng Vân When the eight-month-old daughter of Lê Thị Mai Hương kept vomiting and crying, she brought her to hospital with the hope of getting a diagnosis and treatment. Yet it took six months and visits to several hospitals for her daughter, Nhã Quyên, to be finally diagnosed with urea cycle disorder, a rare genetic condition. “After six months and many hospital visits, I was relieved and happy to know that finally doctors could name my daughter’s disease. My family and I were hopeful that after treatment, she would grow up, go to school and would no longer have to see doctors every week like before,” Hương said. Yet when the doctor explained more about the rare disease and she also researched it by herself, Hương started to understand that the disorder will be present throughout her daughter’s life. Urea cycle disorders are hereditary metabolic disorders caused by … [Read more...] about Diseases can be rare but love shouldn’t be
Little boy struggling with dangerous disease facing death risk
A poor couple in the central province of Quang Tri is calling for the financial support for their little son who is on the verge of death due to a dangerous and rare disease. Phan Xuan Ky, 10 years old, in Trieu Do Commune, Tien Phong District, has been bed-ridden for months since he was found to contract Adrenoleukodystrophy. Ky weighs only 12 kilos His father Phan Van Bang, 43, said that early last year, he suddenly fainted while coming back home from school. He was then taken to a local hospital, but doctors there couldn’t diagnose his problem. After that, he was taken to Hue General Hospital. Through many tests, he was diagnosed with Adrenoleukodystrophy. The treatment was so costly that his parents had to bring him back home. Since then, his condition has become more serious. The couple continued borrowing more money from different sources to take their son to Hanoi for further examinations. However, doctors there said his condition was very critical and … [Read more...] about Little boy struggling with dangerous disease facing death risk
Singaporean company helps Vietnam with rare disease treatment
At the signing ceremony (Photo: VNA) Hanoi (VNA) – Shire Singapore PTE. Ltd. (Shire) will help Vietnam improve the quality of diagnosis, treatment and management of a number of rare diseases in the country for the 2018-2023 period. A memorandum of understanding (MoU) to this effect was signed by representatives of the Medical Services Administration under Vietnam’s Health Ministry and Shire Vietnam in Hanoi on April 20. Under the MoU, the Singaporean company will also support Vietnam in improving professional knowledge, implementing policies on rare disease management and ensuring policies on rare medicine supply in the country, said Luong Ngoc Khue, Director of the Medical Services Administration. During the first stage, the two sides will work together to develop a national guideline to improve the quality of diagnosis, treatment and management of Haemophilia and Primary Immune Deficiency (PID) as well as to support policy development on rare diseases in Vietnam. … [Read more...] about Singaporean company helps Vietnam with rare disease treatment
MoU signed for treatment of rare diseases
The health ministry’s Medical Services Administration and Shire Singapore today sign of a joint Memorandum of Understanding on improving diagnosis, treatment and management of rare diseases in Việt Nam. — VNS Photo Thanh Hải Viet Nam News HÀ NỘI — The Medical Services Administration, under the Ministry of Health (MoH), and Shire Singapore Ltd signed a Memorandum of Understanding (MoU) today. Under the deal, the two parties will collaborate on improving the diagnosis, treatment and management of rare diseases in Việt Nam until 2023. “Việt Nam has a population of more than 90 million, but only few of the rare diseases have specific treatment. To improve their diagnosis and treatment, there is a need to work with an industry leader to create positive changes for patients in future. This will also facilitate the introduction of ‘orphan drugs’ provision policies in Việt Nam where there is a significant … [Read more...] about MoU signed for treatment of rare diseases